Lou's Diary
A little prince, not quite like the others
  Hello, I am a little boy who only sees right with his heart...
Which doesn't make my parent's daily life any easier. So I'm blind and different (mentally speaking).




« october 2005 »



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Lou the acrobat


Welcome to Lou's blog

This blog was born in french during autumn 2003 and is now progressively being translated in your language.

New articles will therefore appear on a regular basis.


... my apologies to the people who hadn't understood this yet, all articles on this website are created and written by myself (his dad).

Lou is currently unable to do it,, just like he is to this day unable to grasp the concept of a "computer", "internet", or to focus for a long period of time on a conversation. Only time will tell us if we manage to integrate him completely in the world in which he lives.

Therefore all stories, despite relating actual facts, are obviously biased by my interpretation of his behavior. But having known him for over five years, I don't think I'm getting it wrong.

Want to know more ? Check out the "read me" page.

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Thank you to the "Roi Baudoin" foundation ( "Parcours hors pistes" ). The new design, hosting and translations were partially made possible by their financial support.
Many thanks to Marco Pappalardo et Laetitia Bouet for the translation.


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wednesday 12 october 2005

125. My perception 4 : What does being mean

percpetion (Mc Lean)(continued)

So you have to be patient with me, extremely patient : to explain, to explain, to explain.
Again and again.
By looking at the problem from any possible angle in order to find the right words, the words
I'll understand.

Daddy and mommy have quite a few brainteasers to try and explain to me !
For example : what does being blind mean ?
Easy you say ? Well explain it to me !
Is it "not seeing" ?
Yes, of course, but what's "seeing" ?
I know I have eyes, but I don't know how to use them.
I can tell daddy, mommy, and everybody else around me move with an insolent ease, they guess things, prevent them, and that's thanks to "sight" ... But you can tell me it's thanks to sight all you want, I'm still none the wiser, because what is "sight" anyway ?
One of the five "senses" ?
What's a "sense" ?

Ok, I get the first four (and even then I must still understand they are my tools of perception and they are called "senses")
But the fifth, the one I'm missing...
Is it seeing pictures ?
Sure again, but what are pictures to someone who's never see one ?
Besides, I also create "pictures" in my head, in my own way.
The picture of mommy, for example, is a stamp, an odor, a noise, the grain of the skin, spatial shape.
Go try and explain me sight !

Let's reverse the roles :

lire la suite

By Luc Boland, at 11:51 :: My own world :: #145 :: 26 comments

monday 10 october 2005

My perception 3 : My body


Basically the doctor said about myself that perceiving life is still very complicated for me (it's already hard enough for each one of us !). I'm still too busy defining "myself with my body". Only when I'm finished touring my little house, from the basement to the attic, and I therefore have a "practical" and reassuring map of it, will I begin to show a little more interest in the garden all around it. The trick is not to let me become complacent in my mansion.

I could decide to lock all the doors and immure myself in my little house, just like I could slowly go on a journey outside (which is already happening a little).
Such is the challenge ! Nothing is won and nothing is lost.
In conclusion, there's still some work ahead for daddy and mommy.
It's up to them to find the right strategy, to reassure me, to be my guide.
Up to them to block the door with their foot when I want to slam it, to discreetely go through the chimney to meet me home.
Up to them to place lots of shiny garlands outside to make me want to leave "home".

In fact, I'm more like the fox in "Petit Prince", who needs to be tamed in order to come out of its den.

(to be continued...)
By Luc Boland, at 10:43 :: My own world :: #144 :: No comment
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