Lou's Diary
A little prince, not quite like the others
  Hello, I am a little boy who only sees right with his heart...
Which doesn't make my parent's daily life any easier. So I'm blind and different (mentally speaking).




« september 2005 »



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Lou and water


Welcome to Lou's blog

This blog was born in french during autumn 2003 and is now progressively being translated in your language.

New articles will therefore appear on a regular basis.


... my apologies to the people who hadn't understood this yet, all articles on this website are created and written by myself (his dad).

Lou is currently unable to do it,, just like he is to this day unable to grasp the concept of a "computer", "internet", or to focus for a long period of time on a conversation. Only time will tell us if we manage to integrate him completely in the world in which he lives.

Therefore all stories, despite relating actual facts, are obviously biased by my interpretation of his behavior. But having known him for over five years, I don't think I'm getting it wrong.

Want to know more ? Check out the "read me" page.

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Thank you to the "Roi Baudoin" foundation ( "Parcours hors pistes" ). The new design, hosting and translations were partially made possible by their financial support.
Many thanks to Marco Pappalardo et Laetitia Bouet for the translation.


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wednesday 28 september 2005

123. My perception 2 : Demonstration at the doctor's

All that to tell you that yesterday, me and daddy went to see the neuropediatrician (for once, mommy was off duty).
It's a man I see every six months to evaluate my psychomotor and neurological development.

As soon as daddy picked me up from school and told me where we were headed, I demanded some guarantees : "no little jabs !" (I get the daily evening "little jab" for my hormones - which goes down without a problem - and hospital "jabs" confused).
Daddy reassures me : we are indeed going to the hospital, but there will be no jab.
So I stay cool.

After an hour long trip (we must go the other end of the city), we get to the hospital.

In the admissions hall, it's full of noises, children yelling and also crying.
I don't like that ! I need to be reassured, I need explanations, otherwise ...
Then it's the stroller ride in a maze of hallways.
Finally the waiting, not long for once, before meeting the doctor.

Feeling in great shape, I give him right away a demonstration of "how well I can jump" :
I jump up and down, without any support, and manage to defeat Newton over a few centimeters.
The doctor appreciates.
I also perform the "stroller, stay !" show in the hallway, to show him how well I can walk now.
He's very proud of me.
So I blurt my usual verbiage (Marie-Anne, little dog Courage, swear words, "piapaille woops!" etc...), punctuated by my repetitive gestures, kicking, and other movements called "reassurance" movements.

Daddy knows all about it, but for your benefit I'll explain again what "reassurance" movements are : since I can't see, all I have to remind me of the existence of parts of - or my whole - body is the sense of touch and feeling my extremities move. Even sticking my finger in my mouth (see post 116) betrays the need to feel that part of my body as actually being there. The problem is, I can't do a hundred things at the same time. I can't "pick up the pieces" while I'm comunicating. That's one of the main problems with me.
But the doctor is hopeful.
He talks for a while with daddy, while I listen. It's going into one ear, and soon enough it will be going out the other.
Hence my crude transcription, because to me it's all chinese.
Maybe someone will be able to understand, and hopefully I'm not twisting their words too much.

(... to be continued)
By Luc Boland :: mercredi 28 septembre 2005 at 18:43 :: My own world :: #143 :: rss

Your comments

I'm touched by your blog, particularly by your love and compassion for your exceptional child. As a culture we have so narrowed our definition of normal that few of us any longer can travel comfortably on its pavement. You might be interested in my blog site, particularly the blog called, "A Highway Called Normal." It's interesting how I came across your blog. I did an image search on google for the word 'perception'. I wanted to use a few of the images for an upcoming blog. Funny how things get connected. Best regards to you and your family.
Bill Marshall

dimanche 12 février 2006 at 19:12, comment from Bill Marshall :: email :: site :: #

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