Lou's Diary
A little prince, not quite like the others
  Hello, I am a little boy who only sees right with his heart...
Which doesn't make my parent's daily life any easier. So I'm blind and different (mentally speaking).
 
 
 

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Welcome to Lou's blog


This blog was born in french during autumn 2003 and is now progressively being translated in your language.

New articles will therefore appear on a regular basis.
 

DISCLAIMER


... my apologies to the people who hadn't understood this yet, all articles on this website are created and written by myself (his dad).

Lou is currently unable to do it,, just like he is to this day unable to grasp the concept of a "computer", "internet", or to focus for a long period of time on a conversation. Only time will tell us if we manage to integrate him completely in the world in which he lives.

Therefore all stories, despite relating actual facts, are obviously biased by my interpretation of his behavior. But having known him for over five years, I don't think I'm getting it wrong.

Want to know more ? Check out the "read me" page.
 
 

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THANK YOU


Thank you to the "Roi Baudoin" foundation ( "Parcours hors pistes" ). The new design, hosting and translations were partially made possible by their financial support.
 
Many thanks to Marco Pappalardo et Laetitia Bouet for the translation.
 

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monday 21 february 2005

61. To Lou's older sister

MathildeExceptionally I (Lou's daddy) will be speaking for myself in this article. I'm not much of a super man, and even less of a Rambo. Anyway, to be honest, I occasionally feel blue because of Lou.
Because obviously a lot of things in life remind me of his handicap, of the things he will never see, or discover, or even just live. You can get over pain, injustice, or a wound, and still carry a sign of it, like a scar. And then there are Lou's regression periods, which are not encouraging.
Rest assured though, they are only short phases, for both of us, and I always get over it by thinking of all the happiness and riches Lou has let us discover ( he's got the priviledge and the honor, just like his sisters, of having profundly helped me question myself, and therefore change !).
Anyway. The other day, the blues during a conversation with his older sister Mathilde. We were talking about Lou (he wasn't there), when I let out the thing that hurts me most, that is simply unbearable for me : the idea that some day, when we, the parents, won't be there anymore, Lou could be placed in an institution. Because life may some day make it hard for his sisters to take care of him, for a thousand different reasons, including an implacable one : there comes a day, when every adult builds his own life.

I made it very clear to Mathilde that she shouldn't feel guilty, so that she understands that nothing and nobody will ever be entitled to judge her in that respect. Tough. I would've prefered not to talk about it, even if Mathilde is very mature for an almost-15 years old. But emotion took over me. I couldn't cheat. The next day, she left me a message on the site, which some of you may have read in the comments :
"My dear little brother... my little Lou... even if you can never read this, it will be read to you... you should know that since you arrived in our family, everything changed... But beware, not in a negative way ! Quite the contrary !!! We have much to learn from you, and you from us... It is up to us to open your eyes on the world you're living in and can't see...(for some things it's better this way) but I hope one day you'll understand what I'm trying to convey in this message...
To put it clearly, I want to tell you I will never let you down, even if for the time being I can't really "communicate" with you very well (I will some day, I'll do everything it takes for that) but despite the fact you can't see, you remain an extraordinary little fella, we're all discovering life as you are, in your way !! You're going to teach us a lot... There, I think I said everything I wanted to say, or almost ... Kisses to my little brother whom I love.
Mathilde."

In conclusion, since I know Mathilde is feeling blue at the moment (for a whole series of reasons related to being a teenager), I wanted to honor her and tell her she's a great person and brave, frank and honest in her beliefs, even if the confrontations resulting from it aren't always easy to live with.
That's all.
By Luc Boland :: lundi 21 février 2005 at 14:11 :: Day by day :: #80 :: rss


Your comments

Luc, please pass along to Mathilde and Eva too that I think they seem to be wonderful big sisters. I know that they have a lot to handle for being so young and sometimes it must seem that Loulou takes away time that they feel should be theirs with you and your wife. However, as your mature Mathilde said, you (we because I am learning too) have a lot to learn about the world through Lou. It must be very difficult for you all at times but I pray that Lou will be able to care for himself sufficiently one day to never have to go into an institution. We can only hope. Stay strong Luc! From what I've read (and I've read everything in English you have written) you are a wonderful father with a wonderful family. My thoughts are always with you all.

lundi 21 février 2005 at 15:15, comment from stephie :: email :: site :: #
 

Thank you Stephie, and thank you too Lilian. I try to follow yours stories too, but days are so shorts !

lundi 21 février 2005 at 17:50, comment from Luc :: #
 

Thanks for visiting my site. Yes we are a busy and wild family. Three boys withing a few years of each other will make any home crazy! I thank God every day my children are healthy. Even if they are wild wild boys. I have a daughter but she is only 3 months old. All she does is cry so far!

lundi 21 février 2005 at 23:52, comment from jenni :: email :: site :: #
 

I'm glad you're blogging too. I'll be priviledged to add your family to my blogroll.

mardi 22 février 2005 at 00:50, comment from Dan :: email :: site :: #
 

Hi Luc,
I am so glad to find your blog. Thanks for dropping by mine. You are doing a wonderful thing here, sharing your handsome and cute Lou with the world. I am sure Lou and your family will be an inspiration to many. Once, I had a premature son and he was expected to be special too but unfortunately, he passed away. So, I have a special place in my heart for parents like you and children like Lou. I will come back often. God bless!

jeudi 24 février 2005 at 13:11, comment from lilian :: email :: site :: #
 

Luc, I will have to come back and comment, my eyes are full of tears, what your daughter wrote was truly exceptional. please excuse me, I will be back xoxoxo

dimanche 27 février 2005 at 04:49, comment from vegemiterules :: email :: site :: #
 

Luc, sorry about that, but I have to say again, what a lovely post by Mathilde, it shows maturity beyound her young age, (((((HUGS))))) to Mathilde.
It would be hard my friend thinking/worrying about what the future may bring for Lou, and nothing will stop those thoughts/concerns popping into your mind.
What I love about your family, is that you live every day with love and a positive spirit.
Lou is very special, he was born into a very special family.
The future will work itself out Luc, God Bless you all.
Love Kathy xoxoxoxo

dimanche 27 février 2005 at 05:30, comment from vegemiterules :: email :: site :: #
 

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